Memorial Sloan Kettering Cancer Center Pancreatic Tumor Registry

Full Title

Purpose

There are unknown factors in our environment and in people’s genes that raise the risk of getting pancreatic cancer. To learn about these things, researchers at Memorial Sloan Kettering Cancer Center created a Pancreatic Tumor Registry. This registry includes people with pancreatic cancer, and also people who have a strong family history of this disease.

In this project, researchers are:

• Making a registry of people at high risk for getting pancreatic cancer.
• Studying lifestyle and exposures to things that could be linked to pancreatic cancer.
• Learning if it is possible to monitor people with a higher risk for pancreatic cancer. We examine them regularly with imaging tests to see if they develop pancreatic cancer or precancer.
• Collecting blood and saliva from people with pancreatic cancer and their family members. We hope to find genetic factors linked to this disease.

Who Can Join

To join this study, there are a few conditions. These facts must describe you:

You have pancreatic cancer. You must also have:

• One or more first-degree blood relatives with pancreatic cancer. This includes parents, siblings, and children related to you by blood. They’re not related by marriage or adoption. Researchers will ask your permission to contact your relatives for the surveillance part of the study.
• Two or more second-degree blood relatives with pancreatic cancer. Second-degree blood relatives are grandparents, half-siblings, aunts, uncles, nieces, nephews. They’re related to you by blood, not by marriage or adoption. Researchers will ask your permission to contact your relatives for the surveillance part of the study.
• Certain genetic syndromes.
• Be age 45 or younger when you learned you had pancreatic cancer.

You do not have pancreatic cancer. You may join the surveillance part of the study if either of these facts describes you. You have:

• Two or more first-degree blood relatives with pancreatic cancer. They’re all on the same side of your family. For example, they’re all related to your mother. A first-degree blood relative includes parents, siblings, and children related to you by blood. They’re not related by marriage or adoption.

• Certain genetic syndromes. Also, your blood relatives have pancreatic cancer. They can be either your first-degree or your second-degree relatives.

Contact

For more information and to see if you can join this study, please use our online form. We will ask you about your family’s history with pancreatic cancer. Once we get the form, we will contact you to let you know if you can join the study.