MSK offers expert care for people with neurofibromatosis (NF), schwannomatosis, and NF2-related schwannomatosis.
You may have to be treated by many types of doctors. It’s important to get treatment from a team that works closely together to coordinate your care. You often can get all your visits scheduled for the same day at MSK’s main hospital in Manhattan.
We meet regularly to review your progress. We’re always thinking about ways we can make your quality of life better.
MSK’s care team includes many kinds of experts in treating NF and schwannomatosis. They include:
- Geneticists
- Medical oncologists (cancer doctors)
- Neurologists (doctors with special training in the central nervous system)
- Neuro-oncologists (doctors with special training in brain and spinal tumors)
- Neurosurgeons (doctors with special training in surgery on the central nervous system)
- Nurses
- Ophthalmologists (eye doctors)
- Pain management experts
- Physiatrists (doctors with special training in physical and rehabilitation medicine)
- Radiation oncologists (doctors with special training in using radiation to treat cancer)
- Radiologists (doctors with special training in imaging)
- Rehabilitation experts
- Surgical oncologists (doctors who treat cancer with surgery)
MSK’s Neurofibromatosis Clinic offers care from a team of experts. This disease can be treated and managed, but it affects many parts of the body. You may need treatment from different doctors. That’s why it’s important to get care from a team that works very closely together.
Adult Neuro-Oncology and Neurology
Pediatric Neuro-Oncology
Pediatric Oncology
Neurosurgery
Medical Oncology
Orthopaedic Surgery
Radiation Oncology
Radiology
Available Monday through Friday, to (Eastern time)